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Northwest Kidney Kids
One Parent's Story
Posted on 4/12/2022 by Maggie Mackenzie
NaomiEthan

One Parent's Story - Organ Donation & Connecting with Donor Family

April is Donate Life Month - a month that we bring awareness to organ, eye and tissue donation.

Todays guest is Naomi Mauro, a parent of child, Ethan, born into end stage renal disease. She is also the mom to Lucas and Mackenzie. She lives in the country in SW Washington with her husband, Chad. Today we talk a little bit about Ethan journey to transplant but the focus of todays episode is on organ donation. Naomi and her family experience deciding to pursue transplant as a treatment, awaiting for the call for a deceased donor and connecting with the family five years after transplant.
You can follow along with Ethan and the Mauro Family story through their facebook or instagram page.
According to Donate Life America, 1,900 children under the age of 18 waiting for a variety of organs, and more than 25% of them are under 5 years old. With the most children between 6-18 years old awaiting for a kidney transplant from a Deceased Donor, many more will never be listed and go straight to transplant with a Living Donor.. Donate Life
In this episode we also talk about Kidney Kids Connect, a program through NW Kidney Kids in which kidney kids 8-13 years old come together once a month on zoom to connect with one another. If you are interested in learning more about Kidney Kids Connect visit our website or call/text (503) 893-5671 email info@nwkidneykids.org

Take a listen to the full Podcast HERE
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"We are so grateful to NWKK for hosting kidney camp every year. It’s been an important part of building our support system on this journey. We love our NWKK family!"

"Estamos muy agradecidos con NWKK por organizar un campamento cada año. Ha sido una parte importante de la construcción de nuestro sistema de apoyo en este viaje. ¡Amamos a nuestra familia NWKK!"


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